{"id":53127,"date":"2024-05-17T20:58:13","date_gmt":"2024-05-17T20:58:13","guid":{"rendered":"https:\/\/news.talkwithrattan.com\/index.php\/2024\/05\/17\/girl-three-with-ultra-rare-disease-denied-escape-from-gaza-for-treatment\/"},"modified":"2024-05-17T20:58:13","modified_gmt":"2024-05-17T20:58:13","slug":"girl-three-with-ultra-rare-disease-denied-escape-from-gaza-for-treatment","status":"publish","type":"post","link":"https:\/\/news.talkwithrattan.com\/index.php\/2024\/05\/17\/girl-three-with-ultra-rare-disease-denied-escape-from-gaza-for-treatment\/","title":{"rendered":"Girl, three, with ultra-rare disease denied escape from Gaza for treatment"},"content":{"rendered":"
\"Girl,<\/div>


\n<\/p>\n

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A three-year-old Palestinian girl with an ultra-rare genetic condition has been forced backwards in her quest to leave Gaza for life-saving treatment.<\/p>\n

Julia Abu Zeiter, whose story is being followed by Sky News<\/a><\/strong>, was moved with her family from a tent in the southern city of Rafah and relocated to a supposedly safer zone to the north and further away from the border they had hoped to cross.<\/p>\n

Speaking to Sky News, her mother Maha said: “We were going through the travel procedures to leave Gaza<\/a><\/strong>. When the time for us to travel through Rafah crossing got close, the Israelis occupied the crossing, and they told us they want to invade Rafah.”<\/p>\n

She added: “I was between two fires, not knowing where to go. Do I go try to travel to treat my daughter or do I flee to another place? I did not know where to go.”<\/p>\n

The family’s plight is reflective of the cases of many thousands of other children in Gaza<\/a><\/strong> who are injured or ill and need urgent medical care.<\/p>\n

\n
\n
<\/div>
\n Image:<\/span>
\n Julia’s mother Maha Abu Zeiter
\n <\/span>
\n <\/figcaption><\/figure>\n<\/div>\n

Sky News first met Julia 12 days ago after a family in Washington DC<\/a><\/strong> told us about her case.<\/p>\n

The Abu Zeiter family and the Frost family were connected because their daughters, Julia and Annabel, both suffer from Alternating Hemiplegia of Childhood (AHC).<\/p>\n

Only about a thousand people worldwide have been diagnosed with the neurological disorder.<\/p>\n

Known sometimes as the “time bomb disease”, it causes paralysis and seizures. It is compounded by stress and without medication seizures can be fatal.<\/p>\n

Simon Frost, Annabel’s father, has spent the past month in Washington DC bringing together a global network of people in an effort to try to evacuate Julia. Her case is now being driven by the Palestine Children’s Relief Fund (PCRF).<\/p>\n

\n
\n
\n \"Julia\n <\/div>
\n Image:<\/span>
\n Julia needs round-the-clock care
\n <\/span>
\n <\/figcaption><\/figure>\n<\/div>\n

Local staff from the PCRF coordinated the family’s move out of Rafah to a new tent site further north.<\/p>\n

On Friday morning, they organised the delivery of medication and solar panel chargers.<\/p>\n

Read more:<\/strong>
Bodies of three hostages recovered<\/strong><\/a>
Temporary pier off Gaza completed<\/a><\/strong>
UK won’t stop Israeli arms sales<\/strong><\/a><\/p>\n

\n
\n
\n \"Follow
\n <\/source><\/source><\/picture>\n <\/div>\n
\n Follow Sky News on WhatsApp<\/span><\/p>\n

Keep up with all the latest news from the UK and around the world by following Sky News<\/p>\n

Tap here<\/a>\n <\/div>\n<\/p><\/div>\n<\/p><\/div>\n

Unpacking their few belongings in a tent provided by the government of the United Arab Emirates, Julia’s mother said: “What made us leave Rafah was that the bombing got too strong. I did not know where to go. When the bombing was too strong, I told myself, ‘I need to leave, where am I going to go?'”<\/p>\n

The case is a snapshot of the extraordinary efforts taking place to care for injured and vulnerable children.<\/p>\n

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Please use Chrome browser for a more accessible video player<\/p>\n


\n \"The
\n
\n 1:13<\/span>
\n <\/span><\/p>\n

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Gaza aid flow ‘trending in a different direction’<\/span>
\n <\/figcaption><\/div>\n<\/p><\/div>\n

No one is permitted to leave Gaza at the moment. The Israeli and Egyptian authorities who control each side of the Rafah crossing are blaming each other for the prolonged closure.<\/p>\n

With a full Israeli assault on Rafah thought to be imminent<\/a><\/strong>, some 600,000 displaced people who were sheltering there have now moved back north.<\/p>\n

The repeated displacement is psychologically devastating but makes them physically safer, for now.<\/p>\n

\n
\n
\n

Please use Chrome browser for a more accessible video player<\/p>\n


\n \"JULIA
\n
\n 5:38<\/span>
\n <\/span><\/p>\n

\n

From earlier this month: One child, a warzone and a need to help<\/span>
\n <\/figcaption><\/div>\n<\/p><\/div>\n

<\/p>\n

<\/a><\/p>\n

The layered challenge for aid agencies like the PCRF is to ensure that injured children are put on third-country lists of evacuees with permission to be flown abroad for treatment.<\/p>\n

It is a massive diplomatic and bureaucratic challenge.<\/p>\n

For now, Julia, her family and many thousands of others are going nowhere; trapped inside Gaza after more than seven months of war.<\/p>\n<\/p><\/div>\n


\n
Source link <\/a><\/p>\n","protected":false},"excerpt":{"rendered":"

A three-year-old Palestinian girl with an ultra-rare genetic condition has been forced backwards in her quest to leave Gaza for life-saving treatment. Julia Abu Zeiter, whose story is being followed by Sky News, was moved with her family from a tent in the southern city of Rafah and relocated to a supposedly safer zone to […]<\/p>\n","protected":false},"author":2,"featured_media":53128,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"tdm_status":"","tdm_grid_status":"","fifu_image_url":"https:\/\/e3.365dm.com\/24\/05\/768x432\/skynews-maha-abu-zeiter-julia-abu-zeiter_6557431.jpg?20240517192840","fifu_image_alt":"","footnotes":""},"categories":[1],"tags":[11798,8069,26044,43,1522,7146,52767],"amp_enabled":true,"_links":{"self":[{"href":"https:\/\/news.talkwithrattan.com\/index.php\/wp-json\/wp\/v2\/posts\/53127"}],"collection":[{"href":"https:\/\/news.talkwithrattan.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/news.talkwithrattan.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/news.talkwithrattan.com\/index.php\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/news.talkwithrattan.com\/index.php\/wp-json\/wp\/v2\/comments?post=53127"}],"version-history":[{"count":1,"href":"https:\/\/news.talkwithrattan.com\/index.php\/wp-json\/wp\/v2\/posts\/53127\/revisions"}],"predecessor-version":[{"id":53129,"href":"https:\/\/news.talkwithrattan.com\/index.php\/wp-json\/wp\/v2\/posts\/53127\/revisions\/53129"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/news.talkwithrattan.com\/index.php\/wp-json\/wp\/v2\/media\/53128"}],"wp:attachment":[{"href":"https:\/\/news.talkwithrattan.com\/index.php\/wp-json\/wp\/v2\/media?parent=53127"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/news.talkwithrattan.com\/index.php\/wp-json\/wp\/v2\/categories?post=53127"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/news.talkwithrattan.com\/index.php\/wp-json\/wp\/v2\/tags?post=53127"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}